tag:blogger.com,1999:blog-4448143605565048667.post621816076815369502..comments2024-03-28T05:07:28.311-07:00Comments on Casey Cromwell: Casey the College Celiac: The Hospital: Heaven and Hellcollegeceliackchttp://www.blogger.com/profile/01388041860986251588noreply@blogger.comBlogger80125tag:blogger.com,1999:blog-4448143605565048667.post-91523022710049696222016-01-25T03:51:42.728-08:002016-01-25T03:51:42.728-08:00Thanks for sharing and Keep writing in your unique...Thanks for sharing and Keep writing in your unique style..Anonymoushttps://www.blogger.com/profile/03704313541714127158noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-12106450965256435042013-09-27T21:22:04.383-07:002013-09-27T21:22:04.383-07:00Thank you for the luck - I'll definitely take ...Thank you for the luck - I'll definitely take it! That's my hope too - this tube better be good for something! It definitely isn't easy to keep studying, but that's one thing I won't compromise on. I worked hard to get into college, no one's taking that away from me! :)collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-34599679463844674422013-09-27T21:20:12.042-07:002013-09-27T21:20:12.042-07:00Thanks for the love, Maureen! Yes, the gluten free...Thanks for the love, Maureen! Yes, the gluten free community has been amazing. So much more than I ever expected. All of your comments make my days so much better!collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-4256771009069628132013-09-27T21:18:35.314-07:002013-09-27T21:18:35.314-07:00I can't say how much I appreciate your digital...I can't say how much I appreciate your digital hugs and love! And I love hearing about others' stories - gives me hope that I'll heal soon! Have a great day! :)collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-59730613884771274952013-09-27T21:17:11.168-07:002013-09-27T21:17:11.168-07:00Thank you so much for the thoughts - I always appr...Thank you so much for the thoughts - I always appreciate them! And yes, celiac disease does suck!collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-52597716511330564152013-09-27T21:16:04.684-07:002013-09-27T21:16:04.684-07:00Thanks so much for your wise advice. Finding the r...Thanks so much for your wise advice. Finding the right balance between being positive and allowing sadness is definitely hard, so it helps to feel the acceptance of others for both. I will definitely contact you sometime - the more colelege celiacs I meet, the better! ;)collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-27510151898391261342013-09-25T18:35:18.043-07:002013-09-25T18:35:18.043-07:00Thanks for the thoughts and prayers! :) Support is...Thanks for the thoughts and prayers! :) Support is the best medicine. collegeceliackchttps://www.blogger.com/profile/01388041860986251588noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-12816915665177119232013-09-25T07:56:24.882-07:002013-09-25T07:56:24.882-07:00Hi Casey,
Hope you are getting through this tough...Hi Casey,<br /><br />Hope you are getting through this tough time with minimal scarring to your soul! Sometimes life can throw you a curve ball that is very challenging. But as long as you keep your sense of humor and good spirit, you will be fine.<br /><br />You are undoubtedly getting another type of education than you wanted: food reactivity 101. I happened to be reading a blog post by the Paleo Mom and I thought of you. It is a great introduction to the science behind how our immune system responds to food. The fact that your body did not respond after you started the GF diet may indicate that you are experiencing "cross-reactivity." There are a number of foods that have proteins that can fool your immune system into thinking that they are gluten. You may find that you have to avoid some of these foods also. Once again, I know that sucks. But the rewards of not having your body reacting to food are so great that you eventually get the thing figured out and start feeling good again! So here's a link to Sarah Ballantyne's excellent post about cross reactivity: http://www.thepaleomom.com/2013/03/gluten-cross-reactivity-update-how-your-body-can-still-think-youre-eating-gluten-even-after-giving-it-up.html.<br /><br />Take care and kick this thing in the rear!Anonymoushttps://www.blogger.com/profile/01559811977569252917noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-12131038442210511622013-09-24T08:14:45.614-07:002013-09-24T08:14:45.614-07:00Hi Casey,
So sorry to hear about your woes with t...Hi Casey,<br /><br />So sorry to hear about your woes with the recent hospital stay. I have to post this anonymously, as I'm not officially allowed to comment on things as someone who works in a university, teaching students--but. I am. And I have Celiac Disease, too. I just wanted you to know that for every professor or teaching assistant out there who gives you a funny look because of your tube, you've got another one or two quietly tucked away in their offices on a campus somewhere rooting for you, because we've been there, too.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-49081972290037661792013-09-24T02:41:55.246-07:002013-09-24T02:41:55.246-07:00Hugs hugs hugs.Hugs hugs hugs.Chttps://www.blogger.com/profile/12576111543619247260noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-7071768760218083532013-09-24T00:40:54.155-07:002013-09-24T00:40:54.155-07:00Hi Casey! I found you from The Gluten Dude on Face...Hi Casey! I found you from The Gluten Dude on Facebook. I read all the comments on his page, NFCA's page, and now your blog. That's a lot of love! I hope you feel it!<br /><br />Looking at you sure takes me back to a difficult time. I started having stomachaches when I was 14 and then all hell broke loose when I was 20 and pregnant with my daughter. At 5'-7" I went from 125 down to 85 pounds between my 6th and 12th weeks. Amazingly, she is fine. After I gained a little bit of weight and she was born, I was back to 87 pounds and feeling like complete crap for the next few years. I had a G tube placed when I was 23, but I wasn't diagnosed until I was 29 - 15 years after my symptoms started. I only had the tube for 6 months, but I had IV's off and on during my pregnancy and when I had the tube a few years later. The IV's were my favorite because they kept me hydrated and let my digestive system rest. Eventually I was only using them at night.<br /><br />My weight was somewhat stable for the next few years before I was diagnosed, but would drop for no apparent reason. After I was diagnosed, my weight became normal very quickly and the "standard" GF diet has been a miracle for me. Once your system gets a rest, if you need more food restrictions, just take it one day at a time. There are tons of people who do understand! I am so happy for you that you found out now rather than dealing with pain and isolation for years to come, no matter how much that doesn't ease the pain at this mokent.<br /><br />Keep writing in you unique and fun style! And keep your head up. Many great things are yet to come and you are on the right path to enjoying them completely! Sending hugs your way from Gilbert, Arizona! LauraLauraAZhttps://www.blogger.com/profile/18310580250620377470noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-46029557295427828512013-09-24T00:22:55.405-07:002013-09-24T00:22:55.405-07:00Hi Casey, came across your story through gluten du...Hi Casey, came across your story through gluten dude's blog and had to comment. I am a lifelong coeliac and also happen to work in the Coeliac Society in Ireland. I want to say that I thoroughly admire your tenacity and your willingness to share your story. We posted this on our facebook page yesterday and again today as I believe that more coeliacs and non-coeliacs need to be aware just how serious a disease this can be. I truly hope that you recover and can continue to enjoy a full and healthy life. I hope also that there will start to be some understanding about this so-not-a-fad diet. I remember as a kid, friends tempting me to try some fig rolls - just to see what would happen (head roll off or something exciting?). You are very strong and brave and I hope you get well soon. <br />A fellow coeliac,<br />EmmaAnonymoushttps://www.blogger.com/profile/09695589834713523686noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-16557207091899182992013-09-23T22:31:01.384-07:002013-09-23T22:31:01.384-07:00You've got a tough road ahead of you, Casey. ...You've got a tough road ahead of you, Casey. You will make it. Your blog entry here and your note to Gluten Dude show your strength. Tell yourself "I am improving daily."<br /><br />To those who stare at you on campus, tell them the tube is the high tech version of the nose ring.Clarenoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-81671331500385705312013-09-23T21:26:52.705-07:002013-09-23T21:26:52.705-07:00Hi, Casey. I heard about you, your story and your ...Hi, Casey. I heard about you, your story and your blog through Gluten Free Mom and Gluten Dude in the last two days. Thank you for sharing your struggle. I hope that you are feeling better and will be out of the hospital and returning to school soon. My nine-year-old son was recently diagnosed and after six months of a GF diet is feeling better, but still not great. So...back to the GI doctor we go. But I am really beginning to appreciate the GF community and how much I have learned from the experience of others. I wish you a speedy recovery. Stay beautiful and strong.Melissa Bishopnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-49103055487514977732013-09-23T19:37:39.495-07:002013-09-23T19:37:39.495-07:00I was ill too before I realized that my Celiac was...I was ill too before I realized that my Celiac was causing mental health problems, digestion issues, etc.... 15 months after I've gone very strictly gf, I'm starting to feel almost better... I am working full-time, and taking some classes after work. A year ago I couldn't even fathom getting out of bed for more than a couple of hours at a time. I'm sending you some internet hugs -- and it isn't a fun time, but with patience you'll get better and feel a million times as energetic in the next six months. :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-16977038391817499032013-09-23T19:34:09.000-07:002013-09-23T19:34:09.000-07:00I think she was/ is so ill that going GF wasn'...I think she was/ is so ill that going GF wasn't enough to heal her stomach and intestines in order to get enough nutrition to heal. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-75546379137270567852013-09-23T19:03:28.973-07:002013-09-23T19:03:28.973-07:00Prayers for you for a speedy recovery and a future...Prayers for you for a speedy recovery and a future full of happiness and success. I am also celiac and was pretty sick before I was diagnosed, there were days that I cried so much I didn't think I had any tears left in me. I was lucky that I got diagnosed when I did, my family and friends were pretty worried about me as I was losing so much weight, it has been a few months now and I'm doing so much better and I know that you will continue to get better also. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-8326476530627555372013-09-23T18:57:04.373-07:002013-09-23T18:57:04.373-07:00Hugs girl! We are praying for you! You are inspi...Hugs girl! We are praying for you! You are inspiring! I pray for your recovery and your strength! Kellyhttps://www.blogger.com/profile/02897358252031026173noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-52174725705994011382013-09-23T17:57:38.021-07:002013-09-23T17:57:38.021-07:00I came to your blog through Gluten Free Mom on Fac...I came to your blog through Gluten Free Mom on Facebook. I must say, I admire your courage! Being real, being open, allowing others into your life when it would be easier to be silent - you're amazing! I don't have celiac, but I'm very gluten sensitive so understand a little bit of what you're enduring. So what if you have a feeding tube when you leave the hospital and go back to school? It is what it is, and those who really care about you will hardly even notice your new accessory. If others stare or ask questions, you have an excellent opportunity to educate them about the impacts of celiac. As I see it, you have chosen to be an ambassador for celiac to the world. Like I said before, you're amazing! So keep your chin up, stay strong, and go out and conquer. You can do it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-46810360092773728572013-09-23T17:20:55.604-07:002013-09-23T17:20:55.604-07:00Hi there Casey. When I was in my sophomore year o...Hi there Casey. When I was in my sophomore year of college two years ago, my legs stopped working for nine months. Doctors couldn't figure out why even though they did every expensive test they could. I was either on crutches, swinging the lower half of my body forward, or in a wheelchair. And it was not fun. Most of the time I kept a happy face, but sometimes I was just frustrated and discouraged, sure that all of my classmates and teachers just thought of me as "That Poor Girl Who Can't Walk". My legs started working again as mysteriously as they had stopped but then I started having seizures, once again with no obvious explanation. They weren't from epilepsy, so the anti-seizure medication didn't stop them. They happened enough that I had to take a hardship withdrawal from all of my college classes. That was two years ago. I just got diagnosed with celiac disease in January and found out that my seizures and inability to walk were probably both caused by gluten. I'm not saying to be thankful it's not worse (because I know that is not what you need to hear). I am saying that I know, at least kind of, how you feel right now. I have gone through the trying to be cheerful about my condition but sometimes being really depressed. I just want you to know you're not alone. And 30 days might seem like a long time now, but it will be over before you know it. I hope you have a quick recovery and can enjoy more and more foods. And I don't know if you have tried Rice Thins yet, but they're gluten free and made by the same people who make Wheat Thins, and they're amazing!Jessicahttp://happeningsfromanundisclosedlocation.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-62576272596905310432013-09-23T17:20:38.114-07:002013-09-23T17:20:38.114-07:00Hi hon - I saw your post and had to send my {{{{{{...Hi hon - I saw your post and had to send my {{{{{{{{{{HUGS}}}}}}}}}}} & <3 to you!! This 53 year old celiac knows you can totally kick this trouble's ass. You will get better, you will get stronger and you will SHINE - of this I am certain. <3 Keeping you in my thoughts and prayers! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-37739576513224963512013-09-23T16:51:14.231-07:002013-09-23T16:51:14.231-07:00I, too, saw your post on Gluten Dude. Your story ...I, too, saw your post on Gluten Dude. Your story made me smile and choke-up. I was diagnosed with celiac in March. I am 5'3" and was 93 lbs (and dropping) when diagnosed. Your story is one of a strong young woman fighting this illusive disease while helping others do the same. Your mother must be very proud of you (as you should be of yourself). My son, now 14, was diagnosed in January. We don't have any support groups where we live...reading your blog made us both feel good. We'll be thinking of you often and checking your blog regularly. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-73783014579461010672013-09-23T16:40:00.841-07:002013-09-23T16:40:00.841-07:00Casey, hang in there! I didn't get better on ...Casey, hang in there! I didn't get better on a GF diet either - Doctor put me on regular steroids, which didn't work. I finally got an appointment with a specialist at Mayo Clinic. He put me on Entocort which really got me back on track. I was also told that I had an immune deficiency due to lack of nutrients. Am now taking B12 shots as well. Entocort is extremely expensive, but worked for me. Just take care, I'm sure your doctor will get you back on track!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-69920415745288761032013-09-23T16:26:02.170-07:002013-09-23T16:26:02.170-07:00Casey! Hang in there, girl! I just wanted to drop ...Casey! Hang in there, girl! I just wanted to drop a note to thank you for sharing so much of yourself with the world. I'm a celiac who was sick for 13 years before being dx and going gluten free. I got better-which I'm so grateful for. But because I look so normal now, my friends have a hard time understanding just how serious Celiac can be for so many of us, gluten free and not. I wanted to thank you for standing up and sharing your story with the world- it is a GREAT service to the invisible illness community and really very brave of you. As someone who is on the outside, I REALLY APPRECIATE YOU AND YOUR BEING SO OPEN. You do whats right for you and know you have a bajillion million people that are cheering you on as you go. -sarah in chicago Unknownhttps://www.blogger.com/profile/17199722083108803998noreply@blogger.comtag:blogger.com,1999:blog-4448143605565048667.post-69852316072787930712013-09-23T16:24:48.868-07:002013-09-23T16:24:48.868-07:00Hang in there sweetie. If they would put the tube...Hang in there sweetie. If they would put the tube in your tummy, it would be much more comfortable and safer (plus out of sight) but maybe that isn't possible in your case...... in any case, hugs and prayers......Anonymousnoreply@blogger.com