When they give
birth, most moms know (or like to think they do!) what to
expect. Sleepless nights. Lots of dirty diapers. And a new
little human to watch grow into a big human with big dreams and responsibilities. Certain
mothers like my own, however, experience another
challenge: being the superhero mom to a child with
celiac disease.
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Especially accurate when celiac disease is involved! (Source) |
My mom and I have always been
close. I'm a third-generation "
mini-me" of her side of the family, and we've been
finishing each other's sentences since I began talking. In a late
ode to this last Mother's Day, however, I'd like to point out how
hard being a mom to a celiac can be. And how grateful I am for the
super mom that has raised, loved and strengthened both the
gluten-eatin' and gluten free
me.
The
typical mom watches her children flourish, kisses
skinned knees and equips them with the tools to
succeed in the big world. My mom has certainly done that, but she's also watched me (literally)
whither away from celiac disease complications. She listened to me
cry on the phone nearly every night during my
freshman year of college, not only because of homesickness, but also because of the
nutritional war dominating my underweight body.
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Throwbacks!
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Moms don't receive
instruction manuals after giving birth that says what to do when children end up in the
hospital. But, somehow, my mom knew exactly the
right words to say, the right way to hold my hand, and the right (gluten free)
treats to pack in her overnight bag. As a baby, I was always
hungry - and I never had a problem gaining weight. As a teenager, I had the
opposite issue, but at both times, Mom never left my side. And when she could finally
hug me without feeling only bones, she hugged me that much
tighter.
The typical mom
nourishes her children, not only with food, but with words of
support and love. Though my mom has never claimed to be a
chef, my sister and I never went hungry - especially when the dinner menu included
chicken nuggets and mac and cheese. Ironically enough, after I first began having
stomach problems, I "found" the gluten free cure myself by
accident. I lived off of mom's plain chicken and rice bake, realizing it was the only meal that made me feel "
normal" without any clue of why. Then, two years ago this May, I picked up the
phone and learned Mom's cooking was literally killing me. And we both made a
change.
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All the family and all the gluten free treats!
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She looked up "
gluten" on the Internet with me and checked out all of the gluten free
cookbooks from the library. We embarked on our first
grocery store run - such a long, label-reading adventure had never before, and luckily has never since, been made - and joined my
mourning of bread. Thanks to all of my family's hard work, my house is now
99% gluten free. And, more than even supporting, my Mom also
joined me in my fight to live gluten free in a world of bread.
As a newly-discovered gluten intolerant, she understands feeling
isolated and awkward at social events. She laughs at the gluten free
memes I text her during the day and comforts me if I get
glutened. She's not a celiac, but she is a fellow wheat-free
warrior. And love is her most effective weapon.
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This meme is a personal favorite!
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The typical mom includes far
more than just the
biological mother - the aunts, the grandmothers, the great-grandmothers and beyond. That I can
relate to. My Grandma Linda is far from a greens
enthusiast, but she always reacts with more curiosity than disgust towards my
green-packed dishes. My Aunt Tami loves to send me new (drool-worthy) gluten free
recipes on
Pinterest and my Grandma Susu cheered on my weight-gain with the same
enthusiasm given to a Texas college football game. And, though my
sister may be younger, she never fails to "mother" me with lots of
bear hugs.
The fact is, we women come in
packs. That means that if anyone (or any
disease) threatens our pack mate, we'll be there for
support, love, and, if necessary, some forceful defense
maneuvers. Beyond the emotional support, these "mothers" have never failed to
ensure that I am well fed, am included in
social eating activities, and know that my dietary restrictions are not a
burden.
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All the girls!
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My mom is
more than typical. Just like my diet, she is a persistent,
extraordinary, shaping force in who I am today. Her hugs have taught me to be
gentle with and love the body I'm in. Her
encouraging words have shown me how to
talk to myself and others, no matter the circumstance. Her
strength has empowered me thrive despite celiac disease challenges. And I can only
hope that, many Mother's Days from now, my child can write a
similar ode about me.
Because,
celiac or no celiac, nineteen years old or younger, my mom has been a
constant role model, cheerleader and ultimate hugger. Happy (late) Mother's Day to the
best mom (and other mothering figures) out there!
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No better sidekick in crime!
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And a late Happy Mother's Day especially to the unsung superheroes mothering a celiac!
How is your mom "atypical?" Does your mom/family make celiac easier? Comment below!
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