Wednesday, September 21, 2016

A Celiac's Diet: Some Advice on "Gluten Free" Food

I discovered the gluten-free diet differently from most Americans. I didn’t read about it in a celebrity tabloid, hear about its astonishing weight loss effects from a friend or try a gluten-free restaurant dish because it’s “trendy.”

I learned about gluten when I weighed 83 lbs at 5’3” – as a freshman in college. After months of constant acid reflux, bloating and lack of appetite, my doctor diagnosed me with celiac disease (an autoimmune condition in which ingesting gluten damages the intestines.) The cure? A gluten-free diet – which, according to Gallup, 1 in 5 Americans currently follows.



Considering that only one percent of Americans have celiac disease, people must believe gluten-free foods have a positive effect on their bodies. There is much to digest about gluten-free food, Entity Magazine (where this post of mine first appeared - check out the original article here!) is here to separate (foodie) fact from fiction.

1 EATING GLUTEN-FREE DOESN'T TRANSLATE TO "I'M TRYING TO LOSE WEIGHT."
I’ve received plenty of memorable reactions when first telling people that I’m gluten-free. One statement that sticks out in my mind, though, occurred the first week of my freshman year of college. Consider that, at that time, I wasn’t just skinny – I was a skeleton. Yet, when I told a gorgeous blonde that I needed to eat gluten-free because of celiac disease, she looked at me and said, “I wish I had celiac so I could be skinny like you.”

According to the online Merriam-Webster Dictionary, the word “diet” has multiple meanings. For instance, it can mean “a food and drink regularly provided or consumed” or a “regimen of eating and drinking sparingly so as to reduce one’s weight.” In other words, gluten-free can be the way that you eat, but not necessarily the way you lose weight. Don’t assume that someone following a “diet” wants to or succeeded at losing weight – as in my case, they may just want to stay alive.

2 EATING GLUTEN-FREE ISN'T ABOUT CUTTING THE CARBS.

People also often think that eating gluten-free just means “taking the bread off” your sandwich. Carbs aren’t the problem for celiacs, however. Instead, as Mayo Clinic explains, celiacs can’t consume the protein gluten found in grains such as wheat, rye, and barley. If I like, I can eat a big, carb-filled sandwich on gluten-free bread for lunch. If you like, you can go on a no-carb or low-carb without “gluten” ever crossing your mind.

3 DITCH PROCESSED FOOD AND OPT FOR NATURALLY GLUTEN-FREE MEALS.

The fact is that most of the “astonishing” benefits the gluten-free diet supposedly provides occurs in people eating naturally gluten-free foods (e.g. rice, fruits and vegetables), rather than processed substitutes. You’ve probably heard the advice to shop the outer aisles of the grocery store to eat the healthiest. Websites like Web MD keep repeating this tip because outer aisles usually contain vegetables, fruits, dairy and meats. These are all whole foods ... which also happen to be gluten-free. 
Gluten-free foods don’t only include the pricy “special” pizzas at your local supermarket; they also feature the same baked potatoes you’ve been eating since childhood.

4 GLUTEN ALSO HIDES IN SOME SNEAKY PLACES...

Don’t believe that all gluten-free foods are easily identifiable. So far, the weirdest food-related item that I learned contained gluten is a set of “environmentally friendly” paper plates at my grocery store ... made with wheat instead of trees.

Gluten can be just as tricky hiding in food. A few of the surprisingly gluten-filled foods? Most soy sauces, alcohol, oats, salad dressings, deli meats and even communion wafers (“Oh my God” is right!). Generally, going gluten-free isn’t low maintenance, nor is it low-carb.

5 "GLUTEN-FREE" ISN'T EVEN THE SAME THING AS "CELIAC SAFE."

Here’s a fun fact about celiac disease: if I ingest even a crumb of gluten, I get sick. If someone uses a cutting board, dishes or utensils that touched gluten to make my gluten-free meal, I get sick. Since celiacs like me are sensitive to cross-contamination, some products that claim to be “gluten-free” aren’t actually safe for us to eat. Certain pizza restaurants, for instance, might offer gluten-free crusts – but if they cook it in the same oven and prepare it in a kitchen with wheat flour flying in the air, my stomach will feel like it's been sliced with a pizza cutter. 

6 BOTTOM LINE: GLUTEN-FREE DOESN'T MEAN "HEALTHY."

Imagine you’re a chef baking your mom’s favorite bread recipe, but you want to nix the gluten. The problem? You need to put something in its place – usually extra sugar, fat, and calories, according to Consumer Reports. Not only that, but gluten-free products often lack key nutrients, such as folic acid and iron, compared to their fortified whole wheat counterparts. Personally, I thrive on a gluten-free diet, but only because my body can’t biologically process gluten.

My (totally non-medically qualified) advice to you? Find which diet (preferably in the first meaning of the word) your body thrives on and know that, while eating gluten-free saves celiacs’ lives, gluten-free foods aren’t the best foods for everyone.

Now that’s a diet story worth sharing.

**Though I wrote, "A Celiac's Date: Some Advice on 'Gluten Free Food'", it first appeared on Entity Magazine**

6 comments:

  1. Yes, yes, yes! My story is sort of at the other end of the spectrum from yours as to our diagnosis. My daughter suffered for years (since she was 5) with all sorts of "stomach problems" & until her hair began to fall out no Dr. could figure it out. She was always very thin. I, on the other hand, was just plain fat. Always had a stomach ache, and by the time she was diagnosed in her mid-20's, I was so worried about her, I thought my multiple times a day unexplained throwing up was nerves and worry over her health situation. When I began to research how to make my home safe for her to visit, I discovered I fit the description for other symptoms. I went to her same Dr. who laughed at me! Fortunately, we have a good relationship, and I knew she was thinking the same as I, "none of her Celiac patients were fat!" But my TTG numbers were almost at 500 and my further more invasive exams showed extensive stomach damage. We were all surprised! How happy we all were to finally have an answer for both my daughter and me! At first I tried everything gluten free out there. But now, I agree totally with you. I love the way whole, healthy, natural foods make me feel. I am still not yet thin or even where I would like to weigh, but I do feel so much healthier. The gluten free world has changed a lot in these last 9 years and there are so many resources out there now. I am grateful for the expertise of those who share their recipes and knowledge/experiences. We'll just have to keep educating those on the fad wagon. Stay healthy! Thanks for your post.

    ReplyDelete
    Replies
    1. I'm so happy to hear that you and your daughter found out what was causing your issues and have adopted a diet that works for you! It always amazes me how differently celiac disease can affect people; some are too skinny, others overweight, and some even have no visible symptoms at all! If anything, both are stories just shows that people - and doctors, especially - can't judge a book by its cover. Sometime, it's up to us to advocate and find out what we can do to improve our own lives! Stay happy and healthy! :)

      Delete
  2. What the gal said to you about wishing she had celiac because she wanted to be skinny is astonishing. I do not have celiac, but my sister-in-law does, and she is so so much happier at her current weight without the digestive misery.
    As you may know, I avoid wheat because of the FODMAPs--the fructans in the wheat that upset my stomach. But I think it's really important for folks to be aware of the distinction between wheat-free and celiac-safe. Celiac is a very serious condition, and while going gluten-free can reduce some (not all) digestive problems, people need to be aware that celiac is not just a sensitivity.
    Also, potatoes ftw!

    ReplyDelete
    Replies
    1. Thanks for the kind comment Joyce. I wish you the best on your FODMAP diet! Following that has definitely helped my mom and I!

      Delete
  3. Celiac and gluten-intolerance is definitely a misunderstood condition. I'm only gluten-intolerant which means I won't get super sick if I do have gluten, but I will cramp up, have severe brain fog, get constipated and even have issues falling asleep at night [insomnia was a HUGE issue for me until I switched to gluten-free!]. And because of the varieties of Celiac and gluten-intolerance, people just don't get it. I hope that you don't allow silly, ignorant comments to bother you!! You are doing what is best for YOUR body. :)

    ReplyDelete
    Replies
    1. It's amazing how gluten can affect people differently, whether they can tolerate it, have gluten intolerance or celiac. Thanks for the kind comment - have a great day!

      Delete